Weaning practices in phenylketonuria vary between health professionals in Europe

Author
Dijsselhof, M. E.
Rosenbaum-Fabian, S.
Rossi, A.
Ruiz, M.
Saligova, J.
Gutierrez-Sanchez, A.
Schlune, A.
Schulpis, K.
Serrano-Nieto, J.
Skarpalezou, A.
Skeath, R.
Slabbert, A.
Straczek, K.
Gizewska, M.
Terry, A.
Thom, R.
Tooke, A.
Tuokkola, J.
van Dam, E.
van den Hurk, T. A. M.
van der Ploegcn, E. M. C.
Kerckhove, K. Vande
van Wegberg, A. M. J.
van Wyk, K.
Vasconcelos, C.
Garcia, V. Velez
Wildgoose, J.
Winkler, T.
Zolkowska, J.
Zuvadelli, J.
MacDonald, A.
Kozanoglu, T.
Van Driessche, M.
Bueno-Delgado, M.
Caine, G.
Pinto, A.
Adams, S.
Ahring, K.
Allen, H.
Almeida, M. F.
Garcia-Arenas, D.
Arslan, N.
Assoun, M.
Altinok, Y. Atik
Barrio-Carreras, D.
Quintana, A. Belanger
Bernabei, S. M.
Bontemps, C.
Boyle, F.
Bruni, G.
Carvalho, R.
Chrobot, A.
Chyz, K.
Cochrane, B.
Correia, C.
Corthouts, K.
Daly, A.
De Leo, S.
Desloovere, A.
De Meyer, A.
De Theux, A.
Didycz, B.
Dokoupil, K.
Drabik, J.
Dunlop, C.
Eberle-Pelloth, W.
Eftring, K.
Ekengrena, J.
Errekalde, I.
Evans, S.
Foucart, A.
Fokkema, L.
Francois, L.
French, M.
Forssell, E.
Gingell, C.
Goncalves, C.
Ozel, H. Gokmen
Grimsley, A.
Gugelmo, G.
Gyure, E.
Heller, C.
Hensler, R.
Jardim, I.
Joost, C.
Joerg-Streller, M.
Jouault, C.
Jung, A.
Kanthe, M.
Koc, N.
Kok, I. L.
Kumru, B.
Lang, F.
Lang, K.
Liegeois, I.
Liguori, A.
Lilje, R.
Lubina, O.
Manta-Vogli, P.
Mayr, D.
Meneses, C.
Newby, C.
Meyer, U.
Mexia, S.
Nicol, C.
Och, U.
Olivas, S. M.
Pedron-Giner, C.
Pereira, R.
Plutowska-Hoffmann, K.
Purves, J.
Dionigi, A. Re
Reinson, K.
Robert, M.
Robertson, L.
Rocha, J. C.
Rohde, C.
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Abstract
Background: In phenylketonuria (PKU), weaning is considered more challenging when compared to feeding healthy infants. The primary aim of weaning is to gradually replace natural protein from breast milk or standard infant formula with solids containing equivalent phenylalanine (Phe). In addition, a Phe-free second stage L-amino acid supplement is usually recommended from around 6 months to replace Phe-free infant formula. Our aim was to assess different weaning approaches used by health professionals across Europe.
URI
http://hdl.handle.net/20.500.12627/8464
https://doi.org/10.1016/j.ymgmr.2018.11.003
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