Clinical management, psychosocial characteristics, and quality of life in patients with homozygous familial hypercholesterolemia undergoing LDL-apheresis in Turkey: Results of a nationwide survey (A-HIT1 registry)

Date
2019
Author
ÖZCEBE, OSMAN İLHAMİ
Kayikcioglu, Meral
Kuman-Tuncel, Oztem
Pirildar, Sebnem
YILMAZ, MEHMET
KAYNAR, LEYLAGÜL
Gokce, Cumali
Temizhan, Ahmet
KARAAĞAÇ AKYOL, TÜLAY
Okutan, Harika
Sag, Saim
Gul, Ozen Oz
Salcioglu, Zafer
Yenercag, Mustafa
Altunkeser, Bulet Behlul
KUKU, İRFAN
Yasar, Hamiyet Yilmaz
Kurtoglu, Erdal
Demir, Melis
Demircioglu, Sinan
PEKKOLAY, ZAFER
İLHAN, OSMAN
Tokgozoglu, Lale
Durms, Rana Berru
Aktan, Melih
Metadata
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Abstract
BACKGROUND: Homozygous familial hypercholesterolemia (HoFH) is a rare, life-threatening inherited disease leading to early-onset atherosclerosis and associated morbidity. Because of its rarity, longitudinal data on the management of HoFH in the real world are lacking, particularly on the impact the condition has on quality of life (QoL), including the impact of the extracorporeal lipid removal procedure apheresis (LA).
URI
http://hdl.handle.net/20.500.12627/95952
https://doi.org/10.1016/j.jacl.2019.02.001
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