ADPedKD: A Global Online Platform on the Management of Children With ADPKD
Date
2019Author
Cvetkovic, M.
Schaefer, S.
Schreuder, M.
Schurmans, T.
Seeman, T.
Segers, N.
Sinha, M.
Snauwaert, E.
Spasojevic, B.
Stabouli, S.
Stoica, C.
Stroescu, R.
Szczepanik, E.
Szczepanska, M.
Taranta-Janusz, K.
Teixeira, A.
Thumfart, J.
Tkaczyk, M.
Torra, R.
Torres, D.
Tram, N.
Utsch, B.
Vande Walle, J.
Vieux, R.
Vitkevic, R.
Wilhelm-Bals, A.
Wuehl, E.
Yuksel, S.
Zachwieja, K.
Yildirim, Z. Y.
De Rechter, Stephanie
Bockenhauer, Detlef
Guay-Woodford, Lisa M.
Liu, Isaac
Mallett, Andrew J.
Soliman, Neveen A.
Sylvestre, Lucimary C.
Schaefer, Franz
Liebau, Max C.
Mekahli, Djalila
Adamczyk, P.
Akinci, N.
Alpay, H.
Ardelean, C.
Ayasreh, N.
Aydin, Z.
Bael, A.
Baudouin, V
Bayrakci, U. S.
Bensman, A.
Bialkevich, H.
Biebuyck, A.
Boyer, O.
Bjanid, O.
Brylka, A.
Caliskan, S.
Cambier, A.
Camelio, A.
Carbone, V
Charbit, M.
Chiodini, B.
Chirita, A.
Cicek, N.
Cerkauskiene, R.
Collard, L.
Conceicao, M.
Constantinescu, I
Couderc, A.
Crapella, B.
Dima, B.
Diomeda, F.
Docx, M.
Dolan, N.
Dossier, C.
Drozdz, D.
Drube, J.
Dunand, O.
Dusan, P.
Eid, L. A.
Emma, F.
Espino Hernandez, M.
Fila, M.
Furlano, M.
Gafencu, M.
Ghuysen, Ms
Giani, M.
Giordano, M.
Girisgen, I
Godefroid, N.
Godron-Dubrasquet, A.
Gojkovic, I
Gonzalez, E.
Gokce, I
Groothoff, J. W.
Guarino, S.
Guffens, A.
Hansen, P.
Harambat, J.
Haumann, S.
He, G.
Heidet, L.
Helmy, R.
Hemery, F.
Hooman, N.
Ilanas, B.
Jankauskiene, A.
Janssens, P.
Karamaria, S.
Kazyra, I
Koenig, J.
Krid, S.
Krug, P.
Kwon, V
La Manna, A.
Leroy, V
Litwin, M.
Lombet, J.
Longo, G.
Lungu, A. C.
Mallawaarachchi, A.
Marin, A.
Marzuillo, P.
Massella, L.
Mastrangelo, A.
McCarthy, H.
Miklaszewska, M.
Moczulska, A.
Montini, G.
Morawiec-Knysak, A.
Morin, D.
Murer, L.
Negru, I
Nobili, F.
Obrycki, L.
Otoukesh, H.
Ozcan, S.
Pape, L.
Papizh, S.
Parvex, P.
Pawlak-Bratkowska, M.
Prikhodina, L.
Prytula, A.
Quinlan, C.
Raes, A.
Ranchin, B.
Ranguelov, N.
Repeckiene, R.
Ronit, C.
Salomon, R.
Santagelo, R.
Saygili, S. K.
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Show full item recordAbstract
Background: Autosomal dominant polycystic kidney disease (ADPKD) is the most common monogenic cause of renal failure. For several decades, ADPKD was regarded as an adult-onset disease. In the past decade, it has become more widely appreciated that the disease course begins in childhood. However, evidence-based guidelines on how to manage and approach children diagnosed with or at risk of ADPKD are lacking. Also, scoring systems to stratify patients into risk categories have been established only for adults. Overall, there are insufficient data on the clinical course during childhood. We therefore initiated the global ADPedKD project to establish a large international pediatric ADPKD cohort for deep characterization.
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