Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world
Author
Ehrsson, Ylva Tiblom
Pesic, Zoran
Ransy, Pierre
Santos, Izabella
Schliephake, Henning
Shah, Ketan
Souza, Fernanda
Sunil, Geethu
Thankappan, Krishnakumar
Tiple, Cristina
Ozdemir-Karatas, Meltem
Peker, Kadriye
Rogers, Simon N.
Alvear, Alvaro
Anesi, Alexandre
Babin, Emmanuel
Batstone, Martin
Brockmeyer, Phillipp
Celedon Carrasco, Claudia
Chien, Chih-Yen
Balik, Ali
Lowe, Derek
Zatonski, Tomasz
Vasquez Lara, Pablo
Valerini, Sara
Tuomi, Lisa
Chirila, Magdalena
Dholam, Kanchan P.
Doss, Jennifer G.
Finizia, Caterina
Ghani, Wan M. Nabilah
Gurav, Sandeep
Kadir, Kathreena
Kolator, Mateusz
Lima, Roberto
Lin, Yu-Tsai
Nhongo, Simon
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Show full item recordAbstract
Background The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow-up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). Methods Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. Results There were 2136 patients with a median total number of PCI items selected of 5 (2-10). "Fear of the cancer returning" (39%) and "dry mouth" (37%) were most common. Twenty-five percent (524) reported less than good QOL. Conclusion There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case-mix variables. There was a strong progressive association between the number of PCI items and QOL.
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