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Palliative and end-of-life care for children with diffuse intrinsic pontine glioma: results from a London cohort study and international survey

dc.contributor.authorKaspers, Gertjan J. L.
dc.contributor.authorCoombes, Lucy
dc.contributor.authorCRUZ, Ofelia
dc.contributor.authorvan Vuurden, Dannis G.
dc.contributor.authorHargrave, Darren R.
dc.contributor.authorvan Zanten, Sophie E. M. Veldhuijzen
dc.contributor.authorvan Meerwijk, Charlotte L. L. I.
dc.contributor.authorJansen, Marc H. A.
dc.contributor.authorTwisk, Jos W. R.
dc.contributor.authorANDERSON, Anna-Karenia
dc.contributor.authorBREEN, Maggie
dc.contributor.authorHargrave, Olivia J.
dc.contributor.authorHemsley, June
dc.contributor.authorCraig, Finella
dc.date.accessioned2021-03-05T09:44:38Z
dc.date.available2021-03-05T09:44:38Z
dc.date.issued2016
dc.identifier.citationvan Zanten S. E. M. V. , van Meerwijk C. L. L. I. , Jansen M. H. A. , Twisk J. W. R. , ANDERSON A., Coombes L., BREEN M., Hargrave O. J. , Hemsley J., Craig F., et al., "Palliative and end-of-life care for children with diffuse intrinsic pontine glioma: results from a London cohort study and international survey", NEURO-ONCOLOGY, cilt.18, ss.582-588, 2016
dc.identifier.issn1522-8517
dc.identifier.othervv_1032021
dc.identifier.otherav_9f63d78e-9788-4585-b9b1-e3a5fe970844
dc.identifier.urihttp://hdl.handle.net/20.500.12627/106996
dc.identifier.urihttps://doi.org/10.1093/neuonc/nov250
dc.description.abstractBackground. More than 90% of patients with diffuse intrinsic pontine glioma (DIPG) will die within 2 years of diagnosis. Patients deteriorate rapidly during the disease course, which severely impairs their quality of life. To date, no specific research on this clinically important subject has been conducted. This study aimed to compile an inventory of symptoms experienced, interventions applied, and current service provision in end-of-life care for DIPG.
dc.language.isoeng
dc.subjectOnkoloji
dc.subjectNöroloji
dc.subjectSağlık Bilimleri
dc.subjectDahili Tıp Bilimleri
dc.subjectTıp
dc.subjectKLİNİK NEUROLOJİ
dc.subjectKlinik Tıp (MED)
dc.subjectKlinik Tıp
dc.subjectONKOLOJİ
dc.subjectİç Hastalıkları
dc.titlePalliative and end-of-life care for children with diffuse intrinsic pontine glioma: results from a London cohort study and international survey
dc.typeMakale
dc.relation.journalNEURO-ONCOLOGY
dc.contributor.departmentVrije Universiteit Amsterdam , ,
dc.identifier.volume18
dc.identifier.issue4
dc.identifier.startpage582
dc.identifier.endpage588
dc.contributor.firstauthorID23753


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