Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration
Yazar
Lehman, Thomas J. A.
Constantin, Tamas
Cimaz, Rolando
Giani, Theresa
Cantarini, Luca
Falcini, Fernanda
Manzoni, Silvia Magni
Ravelli, Angelo
Rigante, Donato
Zulian, Fracnceso
Miyamae, Takako
Yokota, Shumpei
Sato, Juliana
Magalhaes, Claudia S.
Len, Claudio A.
Appenzeller, Simone
Knupp, Sheila Oliveira
Rodrigues, Marta Cristine
de Almeida, Rozana Gasparello
de Jesus, Adriana Almeida
de Arruda Campos, Lucia Maria
Silva, Clovis
Lazar, Calin
Susic, Gordana
Avcin, Tadej
Cuttica, Ruben
Burgos-Vargas, Ruben
Faugier, Enrique
Anton, Jordi
Sztajnbok, Flavio
Moorthy, Lakshmi Nandini
Roy, Elizabeth
Kurra, Vamsi
Peterson, Margaret G. E.
Modesto, Consuelo
Vazquez, Liza
Barillas, Lilliana
Barinstein, Laura
Sterba, Gary
Maldonado, Irama
ÖZEN, SEZA
Demirkaya, Erkan
Benseler, Susa
Kasapcopur, Ozgur
Hassett, Afton L.
Scot, Christiaan
El-Ghoneimy, Dalia
Saad, Shereen
El Feky, Reem
Al-Mayouf, Sulaiman
Dolezalova, Pavla
Malcova, Hana
Herlin, Troels
Nielsen, Susan
Wulffraat, Nico
van Royen, Annet
Marks, Stephen D.
Belot, Alexandre
Brunner, Jurgen
Huemer, Christian
Foeldvari, Ivan
Horneff, Gerd
Saurenman, Traudel
Schroeder, Silke
Pratsidou-Gertsi, Polyxeni
Trachana, Maria
Uziel, Yosef
Aggarwal, Amita
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Background: Rheumatic diseases in children are associated with significant morbidity and poor health-related quality of life (HRQOL). There is no health-related quality of life (HRQOL) scale available specifically for children with less common rheumatic diseases. These diseases share several features with systemic lupus erythematosus (SLE) such as their chronic episodic nature, multi-systemic involvement, and the need for immunosuppressive medications. HRQOL scale developed for pediatric SLE will likely be applicable to children with systemic inflammatory diseases.
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- Makale [92796]